ALS has stolen much from husband

To the editor:

My husband sometimes will smile now while sleeping; I have to wonder what he is thinking.

Could it be memories of snowshoeing while rabbit hunting or fishing with friends? Perhaps memories of holding each of our three children as babies for the first time? Or thoughts of whispering to me to stop leading while we danced? Maybe long-ago memories of the sound of a basketball swishing through the net from one of his outside shots or stolen kisses by our lockers as we avoided Mr. Williams on hallway duty between classes at Saranac High School?

ALS has stolen so much from him; his body and voice are now stilled. ALS has stolen pieces of an active life until the only activities he can now enjoy lie in his memories and dreams.

I hope you will consider joining us for our Walk of Hope for Neurodegenrerative Disease Research in downtown Plattsburgh on May 24, either with your presence or the present of your donation to ALS Raising Hope Foundation (

Please also consider entering a team or joining our team, Roger’s Romans 8:28, (“God will bring good out of all things for those who love Him and work for His purpose.”) We welcome and dearly appreciate sponsors and volunteers as well. You can visit our website for details.

Our area continues to have new cases of ALS and many other neurodegenerative diseases (such as Alzheimer’s, Parkinson’s, Huntington’s and others). Research needs our support, now more than ever, with the changes in the new health care laws and the dwindling funding sources.

Your donations will go to MIND at Massachusetts General Hospital, where they are doing cutting-edge research. Dr. Merit Cudkowicz, chief of neurology at MGH, will be at the Walk of Hope and willing to share their latest information as well as answer any questions you may have.

Come walk with us and be a friend to so many suffering from these diseases. Let’s make record donations this year and give them a gift of hope.

Darlene Long

Peru, N.Y.